Patient involvment in clinical research
Patients are the most important partners in clinical research. They commit their time and place great trust in the study team. Their contribution to the success of research projects is crucial, regardless of whether they actively participate in a clinical study or make their data and samples available to research. They themselves usually have no predictable benefits from participating in a study, but have expectations and needs.
We specifically advocate opportunities for patient participation in clinical research and support research groups in their efforts.
![[Translate to English:] Patientenbeteiligung](/fileadmin/_processed_/f/9/csm_AdobeStock_255111458_2c70fc95f4.jpeg?1614745369)
Reference projects
Active participation of patient representatives
Registration number
NCT04293146
Principal Investigator
Research group W. P. Weber, Breast Centre University Hospital Basel
Participation in a Data Safety Monitorig Board
Study
Tamoxifen in Duchenne muscular dystrophy
Registration number
NCT03354039
Principal Investigator
Research group D. Fischer, Neurology
Online survey with potential study participants
Study
Patient Involvement to Inform the Design of a Clinical Trial in Postbariatric Hypoglycemia
Registration number
-
Principal Investigator
Research group M. Donath, Endocrinology, Metabolism & Developmental Disorders
EUPATI
European patient academy for education and training
Goal
To enhance the ability of patients to understand and participate in medical research and development and to make objective, reliable and patient-friendly information available to the public.
DKF support
Founding member and member of the Executive Board
Study advertisements
Well designed information materials in lay language
Goal
To support study teams in recruiting study participants with clear and appealing information materials.
DKF support
Design, getting approval by ethics committees, print, social media postings