Patient involvment in clinical research
Patients are the most important partners in clinical research. They commit their time and place great trust in the study team. Their contribution to the success of research projects is crucial, regardless of whether they actively participate in a clinical study or make their data and samples available to research. They themselves usually have no predictable benefits from participating in a study, but have expectations and needs.
We specifically advocate opportunities for patient participation in clinical research and support research groups in their efforts.
Active participation of patient representatives
Research group W. P. Weber, Breast Centre University Hospital Basel
Online survey with potential study participants
Research group M. Donath, Endocrinology, Metabolism & Developmental Disorders
European patient academy for education and training
To enhance the ability of patients to understand and participate in medical research and development and to make objective, reliable and patient-friendly information available to the public.
Founding member and member of the Executive Board
Well designed information materials in lay language
To support study teams in recruiting study participants with clear and appealing information materials.
Design, getting approval by ethics committees, print, social media postings